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A multi-pronged and customized approach to rare disease clinical trial patient identification and recruitment

Learn how to improve identification, recruitment and retention of rare disease patients.

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Early diagnosis and access to treatment through clinical trials offers the best opportunity to slow disease progression and improve quality of life for rare disease patients. Investment into rare disease research and development continues to grow, however identifying and recruiting patients with specific indications with low disease prevalence proves to remain a significant challenge. A comprehensive and proactive approach is needed to ensure every individual affected by a rare disease is given the opportunity to participate in clinical trials that offer such promise for them and their families.

Read this article to learn how precision medicine, data-driven insights, engagement with medical specialists, relationships with patient networks, patient-centric trials, and seamless integration of technology and processes all work together to improve identification, recruitment and retention of rare disease patients.