How can we advance fair and ethical reimbursement for patients?

By Rosamund Round, VP, Patient Engagement

13 min

Eighty percent of people surveyed who have never enrolled in a clinical trial say travel expenses are the deciding factor1. A fair, meaningful, and ethical reimbursement and stipend framework could make studies more accessible for patients, while also helping sponsors and sites optimize recruitment and retention.

In this podcast, Parexel Vice President of Patient Engagement Rosamund Round leads a discussion on practical challenges and regulatory considerations for patient reimbursement programs in clinical trials. Elizabeth Barksdale, Director of Regulatory Affairs and Scientific Policy for LUNGevity Foundation, a non-profit lung cancer advocacy group, and Luke Gelinas, Senior IRB Chair Director for the global clinical research compliance organization Advarra, advocate for a new framework that fully reimburses patients for travel and compensates them for an additional tier of “soft” costs that will positively impact many patients’ ability to join or remain in a clinical trial, and improve health equity.