Early and often: reimagining patient community engagement to improve clinical trials feasibility

Published on: Feb 27, 2025

Parexel is proud to have collaborated with Global Genes on the whitepaper  “Early and Often: Reimagining Patient Community Engagement to Improve Clinical Trials Feasibility”. In this report, you'll discover compelling findings that emphasize the critical importance of engaging patient advocacy organizations early and often to accelerate trial success while reducing costs and eliminating barriers.

This comprehensive white paper underscores how involving patient communities from the outset of clinical trial design can fundamentally transform trial outcomes. In this report, you'll discover compelling findings that emphasize the critical importance of engaging patient advocacy organizations early and often. 

By adopting a patient-centric strategy, companies can accelerate trial success while reducing costs and eliminating barriers. This is more than a report—it’s a call to action for the biopharmaceutical industry to rethink its approach to rare disease clinical trials.
 

Read the whitepaper

Return to Insights Center

Related Insights

Related Insights

Blog

Hope Interrupted: Why Even Short Gaps in Rare Disease Treatment Matter More Than We Think

Jun 23, 2026

Blog

Adapting the validation process for PROs for rare diseases and other diseases with large unmet need and/or rapid progression

Apr 23, 2024

Blog

Celebrating 40 Years of Rare Disease Progress: WODC Highlights

Jun 6, 2023

Report

New Medicines, Novel Insights: Advancing rare disease drug development

May 22, 2023

Blog

Parexel names first Patient Ambassador

Jun 17, 2022

Article

A shifting European policy landscape: How will Europe’s new incentives reshape rare-disease clinical development?

Oct 26, 2026

Show more